So shiny

So, it took a few days but we are back in hospital.

Damien is a very action-oriented person, so he found waiting around over the weekend and half way through a new week supremely frustrating. But you can;t rush the public hospital system.

The enforced separation was really beginning to wear on Elsie, too. She just wants her family all back together - and who can blame her?

As Damien pointed out, this has been the worst holiday ever.

Little cutie,16 August 2017

Anyway, now we're in the swanky new Monash Children's hospital. It's bright and light and clean, and every ward has playroom and a parents' lounge. There's even a daybed in the window of your room for me to sleep on if I need to stay in with you.

You've had an EEG today and there is now seizure activity visible that was not observed in any of your previous three EEGs. Developing seizures is something that happens to Rett girls. You're going to start on some anti-seizure medications.

Nice hat, Poppy. 17 August 2017

You've also had a visit from the occupational therapist. She's made you some cute little splints to wear, to stop your hands from becoming useless. They look like tiny sparring gloves!